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Browsing by Author "Costa, A"

Now showing 1 - 5 of 5
  • Doença celíaca: revisão de conceitos e novos desenvolvimentos
    Publication . Pedro, N; Lopes, S; Szantho, A; Costa, A; Moura, JJ
    2009Journal article Open access Show more
  • Hiperparatiroidismo primário com gamapatia monoclonal: uma mera associação?
    Publication . Pereira de Moura, JM; Gabriel, J; Figueiredo, H; Costa, A; Alexandrino, MB; Serra e Silva, P
    1994Journal article Open access Show more
  • Jejunal Stricture: single manifestation of Crohn’s Disease
    Publication . Costa, JF; Ilharco, J; Costa, A
    A 60 year-old male patient was admitted to our institution referring repeated episodes of abdominal cramps and distention, weight loss, fatigue and anorexia. Abdominal radiogram showed dilatation of small bowel loops with few gas-fluid levels
    2006Journal article Open access Show more
  • Rastreio aterosclerótico da Zona Centro
    Publication . Serra e Silva, P; Meliço-Silvestre, A; Massano-Cardoso, S; Costa, A; Sampaio, L; Alexandrino, MB; Lourenço, A; Mota, O; Maia, C; Garret, V
    1983Journal article Open access Show more
  • The Portuguese Severe Asthma Registry: Development, Features, and Data Sharing Policies
    Publication . Sá-Sousa, A; Fonseca, JA; Pereira, AM; Ferreira, A; Arrobas, A; Mendes, A; Drummond, M; Videira, W; Costa, T; Farinha, P; Soares, J; Rocha, P; Todo-Bom, A; Sokolova, A; Costa, A; Fernandes, B; Chaves Loureiro, C; Longo, C; Pardal, C; Costa, C; Cruz, C; Loureiro, CC; Lopes, C; Mesquita, D; Faria, E; Magalhães, E; Menezes, F; Todo-Bom, F; Carvalho, F; Regateiro, FS; Falcão, H; Fernandes, I; Gaspar-Marques, J; Viana, J; Ferreira, J; Silva, JM; Simão, L; Almeida, L; Fernandes, L; Ferreira, L; van Zeller, M; Quaresma, M; Castanho, M; André, N; Cortesão, N; Leiria-Pinto, P; Pinto, P; Rosa, P; Carreiro-Martins, P; Gerardo, R; Silva, R; Lucas, S; Almeida, T; Calvo, T
    The Portuguese Severe Asthma Registry (Registo de Asma Grave Portugal, RAG) was developed by an open collaborative network of asthma specialists. RAG collects data from adults and pediatric severe asthma patients that despite treatment optimization and adequate management of comorbidities require step 4/5 treatment according to GINA recommendations. In this paper, we describe the development and implementation of RAG, its features, and data sharing policies. The contents and structure of RAG were defined in a multistep consensus process. A pilot version was pretested and iteratively improved. The selection of data elements for RAG considered other severe asthma registries, aiming at characterizing the patient's clinical status whilst avoiding overloading the standard workflow of the clinical appointment. Features of RAG include automatic assessment of eligibility, easy data input, and exportable data in natural language that can be pasted directly in patients' electronic health record and security features to enable data sharing (among researchers and with other international databases) without compromising patients' confidentiality. RAG is a national web-based disease registry of severe asthma patients, available at asmagrave.pt. It allows prospective clinical data collection, promotes standardized care and collaborative clinical research, and may contribute to inform evidence-based healthcare policies for severe asthma.
    2018Journal article Open access Show more